The Lives of End-of-Life Caregivers

 “It requires character to do this kind of job.”

— Mathurin “Math” Maoundonodji, end-of-life home caregiver

In 2020-2021, we paired five ethnographers with five end-of-life, home caregivers to observe, document, and record their stories and knowledge. Conversations between caregivers and ethnographers took place during the pandemic, over Zoom and later in person. The pairs created meaningful relationships, and their conversations not only help us “see” and celebrate the work of caregivers, but also contribute to the field of folklife ethnography, making space for shared grief and prioritizing a commitment to trust and authenticity. Download the full booklet: Precarious Intimacies: The Lives of End-of-Life Caregivers.

The Caregivers

Click on caregiver photos to listen to interview excerpts.

Ethnographers

Charlie Buck, Kate DeShiell, Kathleen Dreier, Amalia Mora & Suzanne Morrison

Photographs: Kathleen Dreier

Project coordinators: Kimi Eisele & Nelda Ruiz

Audio production & editing: Alex Pere

With funding from: